Epidermylosis Bullosa: A Mother's Story of Hope

Bringing to Light a Disease Dentistry Isn't Well-Equipped to Treat.

This is the story of Solomon, a sweet and inspiring child who has Epidermylosis Bullosa, a disease that causes the skin and mucous membranes to be as fragile as butterfly wings; any mild trauma or friction results in their skin blistering. This also affects their oral health, and we as dental professionals aren't well-informed on how to provide the care they need, and in a safe environment.  

Dori shares her story not only through her eyes as a mother, but also through the eyes of her son Solomon, and her journey to find a dentist to treat her son safely. As a collective, we can start bringing awareness to this disease and how we, as health care providers, can give them the care they deserve.  

Resources available for parents of EB and dental professionals

https://www.debra.org

https://www.aegisdentalnetwork.com/id/2017/11/first-do-no-harm

https://www.ebresearch.org

https://www.dentalclinics.umn.edu/our-clinics/moos-tower-clinics/specialty-clinics/pediatric-dentistry

https://www.cure-eb.org